It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Like so many others, Clyde’s path to a myasthenia gravis diagnosis was a long and winding one. Four years ago, when Clyde started having trouble getting words out, chewing, breathing, swallowing, even a lisp with his speech, his family thought he was having a stroke. A local hospital eliminated that diagnosis but sent him to the University of Louisville for more tests. It took another 6 months, countless tests, and the intervention of a nurse who suspected myasthenia gravis, for Clyde to be properly diagnosed.
Once Clyde was diagnosed, his family started to research. Clyde himself didn’t want to learn more about the disease as he didn’t want to learn how bad things could get. He had already suffered through bouts of crisis, and as his extremities weakened, he began to have bouts of double-vision and his voice issues worsened. But as his son-in-law, Daniel did some research and came across the MG Walk. Daniel thought it would be great to bring together family and friends to rally for the cause and surprise Clyde at the MG Walk. They did just that with Daniel’s company providing signs for Team Underdog and Clyde’s daughter creating team T-shirts. Clyde may have been surprised by the team – and the over $1,600 they raised – but he knew just what to do at the Walk: use this opportunity to raise awareness and funds to fight myasthenia gravis and connect with other patients and caregivers. A highlight of that walk for Clyde was inviting a fellow MG patient, who attended the walk on her own, to join them for the evening, just to talk, share stories, and remind her that she wasn’t alone; there is a whole community of MG Walkers out there fighting alongside her.
Clyde is in refractory MG under the care of Dr. Brown and Nurse Practitioner Johanna Harris. Though the medications he’s tried haven’t completely alleviated his symptoms, he is still trying new options. As the Kentucky MG Walk Hero, he is committed to creating continued awareness for the MG cause – and to raise the crucial dollars to ensure every MG patient has a voice in this fight.
Use the following documents to help spread the world to your network and community about the upcoming Kentucky MG Walk!
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: