Come and join us for the 2018 National MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!
All that’s left after that is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!
Use the following documents to help spread the world to your network and community about the upcoming National MG Walk!
When a Venti from Starbucks did nothing to help keep Jennifer Cote’s eyes open, she knew she had a problem, and would later realize that this was the beginning of her journey with myasthenia gravis.
It was the summer of 2008, and Jennifer began to notice that not only was her eyes drooping, but she was having difficulties swallowing. Seeking solutions, Jennifer turned first to her local Optometrist who when faced with Jennifer’s symptoms immediately got out her medical books and concluded that Jennifer may have MG. After returning home and doing some internet sleuthing, Jennifer began to realize her symptoms did seem to align with MG, and turned to her medical team for a blood test. Jennifer was officially diagnosed with MG in December of 2008 and was referred to referred to MG specialist, Dr. Benetar.
Establishing care with Dr. Benatar could not have come at a better time for Jennifer, as she experienced her first crisis in April of 2009 and was hospitalized for a week. Following the hospitalization, Jennifer began IVIG monthly, as well as prednisone. While both treatments showed slight improvement, unfortunately Jennifer was still experiencing significant issues such as not being able to eat or hold things in her hands. In 2010, Jennifer participated in the phase 2 trials of Soliris, which helped alleviate her MG symptoms tremendously.
However, through the ups and downs of her journey with MG, Jennifer never gave up and become involved with the MG community both locally– starting the Atlanta MG Support Group and first Georgia MG Walk, as well as nationally, by joining the MGFA Board in 2009. Since then, Jennifer has been instrumental in creating the MG Patient Registry, serving on the MGFA executive Committee, and the MGFA Special Committee for Outreach.
Linda L. Kusner, PhD is the Chair of MGFA’s Medical Scientific Advisory Board. She is an Associate Professor at George Washington University in the department of Pharmacology and Physiology. Dr. Kusner leads a research laboratory that focuses on the development and testing of therapeutics for MG. Dr. Kusner, along with Dr. Burns of University of Virginia, organized the 13th International Conference on Myasthenia Gravis and Related Disorders that was held in New York City with the support of New York Academy of Sciences, National Institute of Health, and Myasthenia Gravis Foundation of America.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: