THANK YOU FOR JOINING US AT THE 2018 VIRGINIA MG WALK!

It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.

Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!

Click here for photos from the event and relive the memories of a great Walk!

PLEASE NOTE: In order to view the most “up to date” fundraising totals on this page, please refresh your browser (or hit ctrl+F5). Thank you!


WE ARE THRILLED TO ANNOUNCE OUR
2018 VIRGINIA MG WALK HERO IS…
DREA CARBONE!

 

 

12 years ago, the symptoms started.

As is the case with many Myasthenia Gravis patients, she chalked up the difficulty swallowing, exhaustion and poor vision to getting older. It was the deteriorating vision that led to her actual diagnosis. Being that the prisms she had relied on for vision improvement were no longer working, her next option was surgery. Before that, however, some tests for rare diseases uncovered a Myasthenia Gravis diagnosis in March of 2017. Since that initial diagnosis, however, other tests for MG have come up negative or inconclusive, but her symptoms – the worsening double-vision, tingly sensation in her legs, occasional short-term memory loss – are all still present. None of this has stopped Drea from advocating for herself and for others who may be having similar challenges in finding the definitive answers to their symptoms and a clear diagnosis.

Upon hearing that initial diagnosis of MG, she took a cue from her mother, a cancer survivor (among other diseases), and began doing research on myasthenia gravis and discovered the MGFA. She saw that there was an MG Walk local to her, and knew it was something she had to join. She’s been a veteran fundraiser since high school, raising funds for causes like Relay For Life, to support her mother. Now, she was back at it – raising money and walking to create awareness – but this time for herself.

Almost immediately, Drea’s mother and their friends, rallied around her; The $50 and $100 donations started pouring in. Additionally, Drea utilized her sphere of influence for even greater awareness and fundraising success. First stop was Chadwick’s, a local restaurant where Drea was a regular. She asked them to do a fundraiser to support her MG Walk. Between donations, raffles and the bartenders donating tips, they raised over $1,000 in one night. Another $1,000 was raised through Drea’s work, joining together to support her with a fundraiser through their online store. 2017 was the first time Drea and her team participated in an MG Walk, and they raised over $6,800 and she attended both the Virginia and Bay Area MG Walks. She and her team have plans to do even more and hopes to add a third MG Walk to their efforts very soon!

As the Virginia MG Walk Hero, Drea wants to show others that may be having similar journeys that they are not alone. With MG so widely unknown and unpredictable in how it affects each person, it can be common for doctors to have a hard time diagnosing, which proves so frustrating for the ones going through it all. Drea knows how important it is to keep talking about her experiences and to keep raising awareness of MG and keep raising the funds to find quicker and definitive diagnoses, more and better treatment options, and ultimately a cure.


 

Thank you to our
2018 Virginia MG Walk Medical Ambassador!

 


Sarah Jones, MD
University of Virginia Health System
Assistant Professor, Department of Neurology
 
Jones has special training in electromyography (EMG), which is the main tool used to evaluate the health of nerves and muscles and helps diagnose neuromuscular conditions such as ALS and myasthenia gravis. As a specialist at the UVA Neurosciences Center, Jones works closely with a multidisciplinary care team that includes neurologists, neurosurgeons and therapists, among others.


SPREAD THE WORD!

Use the following documents to help spread the world to your network and community about the upcoming Virginia MG Walk!

MG WALK POSTER – Virginia

MG WALK SOCIAL MEDIA BANNER – Virginia


Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!

On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!

Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!

MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123

If you have questions or want to know more, contact us today:
1-855.MG.Walks (1-855.649.2557)
Info@MGWalk.org

Facebook IconTwitter IconInstagram Icon

 

 

 

Goal: $40,000
100 percent raised
$44,742 raised so far
in Virginia
CONGRATULATIONS!

Updates

Checks should be mailed to:

MG Walk Office 1707 N. Randall Rd, Suite 200 Elgin, IL 60123
Please include the participant, team, and Walk location in the memo section.