Come and join us for the 2017 Arizona MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!
All that’s left after that is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!
Two years living with all the symptoms of this rare disease and it only took the Neurologist about five minutes to diagnosis Sarah. The doctor wanted to administer a shot of Mestinon and admitted he hasn’t drawn blood in years. This didn’t sit well with Sarah, now 18, who had a horrific fear of needles. After waiting two years, Sarah was completely content waiting another 30 mins to see if the Mestinon worked. She left the doctor’s office with all her symptoms subsiding. Double vision disappeared, slight increase in strength and the first smile in years happened. She went to Knotts Berry Farm that day to celebrate and took her first smiling picture in years.
All of this happened at a time in her life where she was just starting college. While all her college friends were doing activities and heading out to parties, Sarah was just trying to figure out how to stay awake and make it to class. Looking like a normal college student, people had a hard time understanding her and she struggled to connect. Looking to find support somewhere, she took to the Internet to find groups and forums, but a lot of what she found was a negative outlook from others living with MG. Then, about 5 years ago, she came across the MG Walk when her father and his wife participated in one of the first walks out in Las Vegas. They had a wonderful experience connecting with others who had loved ones living with MG. Sarah was excited that this could be a great place for her to meet people one-on-one and get some positive perspective from people going through similar journeys. She participated in the Arizona MG Walk and was able to talk to others, seek guidance from people who have been living with the illness and also inspire those newly diagnosed.
As the Arizona MG Walk Hero, Sarah is excited to be someone who can inspire positivity and hope in others living with MG. MG gives you a new normal. You may have a boundary that you didn’t have before, but that’s okay. Understand your body, know what those boundaries are and adjust. Doing so, she has found she can enjoy life to the fullest.
Things are different now, Sarah has a very positive outlook on life. She is unafraid to take on any task. living life to the fullest, dragging MG along for the ride. With that, her advice is to; stay positive, don’t get bogged down by what isn’t working or what you feel you can’t do. Learn what you can do to move forward and learn how to adapt so you can still live the life you want.
She is excited to walk with her loving support team: her husband, Jason, twin daughters, Mia and Sophia, her father and his wife, the in-laws, cousins and her friends. Everyone is looking forward to coming out and making a positive difference for the MG Community!
Arizona Neurology and Sleep Center
Phoenix Neurological Associates
|Dr. Luay Shayya is a staff neurologist at the Arizona Neurology and Sleep Center since July 2017. Dr. Shayya completed both his neurology residency and Neuromuscular Medicine fellowship at Cleveland Clinic in 2017. While at Cleveland Clinic, he developed an interest in myasthenia gravis while working under the guidance of Dr. Yuebing Li, a renowned expert on myasthenia gravis and the 2017 MG Walk National Medical Ambassador.||Dr. Saperstein is active in multicenter research studies of treatments for amyotrophic lateral sclerosis, myasthenia gravis, neuropathies, and muscular dystrophy. He has authored or co-authored over 50 journal articles, book chapters and abstracts regarding various aspects of nerve and muscle disease.|
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On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
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