Come and join us for the 2017 Arkansas MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!

All that’s left after that is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!

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We are thrilled to announce that the 2017 Arkansas MG Walk Hero is…Tim Shaver!
 


Tim Shaver has been a registered nurse in pre-op and post-op surgery for his entire career, but when he was diagnosed with MG just 2 years ago in August of 2015, it was the first time he had ever heard of myasthenia gravis. His symptoms had started as early as May of that year, but it wasn’t until his wife was in the hospital that July with a possible life-threatening conditioning that he started to actually take notice. He had been extremely stressed at this time, which the doctors attributed his symptoms to at the time. Tim let it go, as that made sense, but then started to remember that only a few months back he had had difficulty picking up and holding objects, lost control of one of his hands, lost facial control, including his lips, and had difficulty breathing. Going back to the doctor, they ordered a number of tests including an MRI, swallow studies, ultrasounds for a carotid artery, and a stroke work up. When all tests came back negative, they began to suspect MG and treated for that to see if it would alleviate his symptoms. Within 3 days his symptoms went away and they had confidence it was MG. 2 weeks later, the blood tests confirmed their diagnosis.

Even as a nurse, this was Tim’s first time hearing of MG, so he started to read, research, and constantly educate himself on his new diagnosis. A lot of what he came up with wasn’t all that encouraging at first, until he saw a doctor in St. Louis who was confident they could treat Tim’s MG and make him much better. At the beginning of his diagnosis, Tim had become so weak to the point that he was in a power wheelchair, barely able to walk. With the different treatments he has been on, finding the right ones for him, he is doing much better now and even working 1 day a week at a surgery center.

Tim really wanted to meet others face to face who were living with MG and really found it encouraging to talk and learn from others about what they have gone through, what they have learned along the way, and how they deal with their MG on a daily basis. His daughter was working at a crisis pregnancy center, where she met their medical director, Vickie Henderson, who is also living with MG and was also coordinating the first MG Walk in Arkansas last year. This looked to be the perfect way to meet others and do something positive. Tim set a goal to walk the entire 5k and his wife was right by his side, with his powerchair should he need it. It took him an hour and a half, but he did it and has been working to build his endurance ever since. His plan this year is to be even faster and stronger.

As the 2017 Arkansas MG Walk Hero, Tim wants to be someone that is there for others living with MG, just as he was able to find at the Walk when he most needed that. At the beginning of his diagnosis, he felt very much in the dark about everything, and it wasn’t until he started to talk to his doctor in St. Louis, and others in the community, that he was able to learn more of what it means to live with MG. He hopes to be someone that those who are newly diagnosed can look to for support. He continues to inspire those living with MG to never give up; even in the hardest of times. Find support by talking to others, encouraging each other in the MG Community, and even joining a support group to meet those that are going through similar journeys. He’s looking forward to walking with everyone again on December 2 and meeting and inspiring even more people in the MG Community!


Thank you to our 2017 Arkansas MG Walk Medical Ambassadors!
 


Dr. Anthony Davis
Davis Neurology


Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!

On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!

Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!

MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123

If you have questions or want to know more, contact us today:
1-855.MG.Walks (1-855.649.2557)
Info@MGWalk.org

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