It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Joni Kendrick’s symptoms began in 2012. After noticing a weakness in her mouth and eyes, she discovered more specific oddities: She couldn’t hold water in her mouth, her eyes would pop open when she tried to go to sleep because she physically couldn’t keep them closed. It was when she was working out at the gym and her legs collapsed beneath her that she knew something was very wrong and decided to see a neurologist for answers. The doctor that they partnered with claimed to be an MG “expert”, but she later found out that he really only had four myasthenia gravis patients in his practice and his knowledge was very limited. Under his care she underwent a thymectomy, to no avail. Her symptoms continued to progress…she had a hard time holding up a hair dryer, her arms and legs felt like lead weights, her speech was sometimes slurred, she choked on food frequently, and felt like she couldn’t control her arms and legs completely…knocking things over and walking like she was intoxicated.
Joni felt lost. Prior to her diagnosis, she had never even heard of Myasthenia Gravis and knew of no one that was familiar with the disease. Thankfully, she found the Central Texas MG Support Group, and it was there that she was connected with Dr. Adam Horvit, her current neurologist who specializes in neuromuscular disorders, as well as many other great resources and the MG Walk!
As the Austin MG Walk Hero, Joni wants others to know the importance of support in your journey with MG, and to seek out other MG patients and resources directly from the MGFA. Too much time on the internet scared her at first, but people from her support group who have been through her same or similar experiences made her more comfortable navigating her disease. She has an amazing, supportive husband, Kevin, and a great community through her church, her small group and her job at Austin Christian Fellowship. They, along with other friends and family, have seen her through the six years of ups and downs with her MG fight. They have stood by her every step of the way…waiting with her for hours during infusions, spending the night in hospital rooms, providing meals and going to a gazillion doctor appointments. It has been truly important to her and an amazing blessing to have that support.
Joni has undergone numerous treatments (Rituxan, CellCept, IVIG) and although she has greatly improved over the years, some of her symptoms are still present: She can’t walk for a very long time without getting fatigued, doesn’t drive and avoids the water and boats, which was one of her favorite things to do, due to her unsteadiness.
Despite all of this, Joni remains strong and optimistic in the hope for a cure and that she will one day soon be able to do all of the things she loves again. She would like to inspire others to be MG Strong!
Use the following documents to help spread the world to your network and community about the upcoming Austin MG Walk!
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: