THANK YOU FOR JOINING US AT THE 2016 AUSTIN MG WALK!

 It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.

Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!

Click here to check out the great photos and relive the memories of a great Walk!


We are thrilled to announce the Austin MG Walk Local Hero is…Linda Ann Joslin!
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Linda Ann was first diagnosed with MG 10 years ago, in November 2006, just 9 months after she had retired from her job at the Post Office after 34 years. In September of that year, she was to have minor surgery; a very quick, in the hospital and back home right after, kind of procedure. However, she woke up in the intermediate care unit and was told she had been in the hospital for 3 days. They hadn’t been able to wake her up. It was after this very scary episode that symptoms of MG started. Her family practitioner thought it was her thyroid acting up, but in just a matter of days she had weirder symptoms, such as her finger pulling towards her wrist. This was when she was referred immediately to a neurologist. It took a few days to get an appointment, and by the time she got to her appointment, she couldn’t even move. She was also experiencing difficulty talking, difficulty breathing, double vision, and distortion in her face. Like many others unsure of what was going on, she started to research muscle weakness and MG popped up in her search, syncing up with a lot of her symptoms. She went back to her doctor, still unable to move and carried into the office by her husband, with a piece of paper that read myasthenia gravis, asking what it was. After 45 minutes, her doctor agreed that what she was experiencing was MG, and that she was in crisis in his office. She was given Mestinon for the first time which made her finally feel relief, and she could move again. Unfortunately, within 2 hours she was weak again, and doctors started talking about Linda Ann needing surgery to set her up with a permacath for plasmapheresis. This was very frightening, the idea for surgery, as her last surgery was when all these symptoms first began. She did have the surgery and plasmapheresis, though it didn’t seem like it was the solution. Having been in crisis many times, and the plasmapheresis not relieving her symptoms, Linda Ann eventually saw Dr. Adam Horvit who explained IVIG to her. Though she had a bad reaction at first, she went back on the treatment and it has worked well every since.

Through this time, Linda Ann felt like she had no one to talk to…no one who knew what this was or understood what she was going through. This is what prompted her to get even more involved, and she and her husband Larry started the Central Texas MG Support Group in February of 2007, so that no one would ever have to suffer alone. Through connecting with others in the MG community, she met Rachel Higgins who gave her more information about the Walk. Now, Linda Ann and her support group have formed a team for the first annual Austin MG Walk on November 13.

Linda Ann has a vision that all doctors, no matter their specialty, will know about MG. She wants to make sure medical professionals know what MG is and how to deal with it should a patient come to them seeking help. This would hopefully also help in leading to much quicker diagnoses and getting onto the best treatment for the patient right away. Her best advice to those going through their own diagnoses is to check out the support groups so that you never feel helpless or like no one understands what you are going through. Make sure to also have the right attitude, the right doctor, and the right medicine. Work together with your doctor to come up with the best course of treatment for you. And, of course, awareness of MG and increasing the knowledge of not only the medical community, but the general public, is the key!


 

Raise awareness and show your support by downloading our NEW MG Walk Twibbon!
 

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Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!

On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!

Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!

MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123

If you have questions or want to know more, contact us today:
1-855.MG.Walks (1-855.649.2557)
Info@MGWalk.org

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2016 Austin MG Walk

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2016 Austin MG Walk 30.288495, -97.524347

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Checks should be mailed to:

MG Walk Office 1707 N. Randall Rd, Suite 200 Elgin, IL 60123
Please include the participant, team, and Walk location in the memo section.