It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
It was a little over 8 years ago that Kathleen Sullivan started to experience her first symptoms of MG. At the time, she didn’t even imagine it could be the start of a new life and a new normal for her. In May of 2010, she was coming back from the Bahamas after celebrating the wedding of her only daughter and while on the plane traveling back, she realized she couldn’t read her book without moving her head as her eyes were having a hard time moving back and forth on the page. While driving back from the airport, around 9:30 that night, she had her first bout of double vision about halfway home. This forced her to close one eye and drive home the rest of the way that way. She chalked it up to just being tired from the 5 days of wedding festivities and hoped that when she woke the next morning all would be resolved. Unfortunately, that was not her experience, and she knew something was very wrong.
She saw her doctor and was eventually referred to a neuro-ophthalmologist who did a number of tests and had a number of initial (and scary!) ideas of what her symptoms could mean. She was eventually put on Mestinon, which cleared up her double vision, and led to her official diagnosis of MG later that summer.
MG has been the start of a very big change in Kathleen’s life. She had been in love with her job at the American Bar Association, a place she worked for 20 years and a job that allowed her to travel the world and have friends all across the globe. She was a very active person, with non-stop energy, but her diagnosis came with hard limitations and she had to make the heartbreaking decision to leave the job she loved so much.
It was last year that Kathleen came upon the Chicagoland MG Walk for the first time. At first, she wanted to show her support by making a donation, but then decided she wanted to do even more and try her hand at fundraising and captaining a team. By the end of the MG Walk season, she had raised over $3,400 and had a big team of family and friends walk for her on event day, when other physical impairments made her unable to walk herself.
As the 2018 Chicagoland MG Walk Hero, Kathleen wants to inspire others to tell their story and to keep spreading the word. She truly believes that sharing your story and talking about MG is the first step towards spreading the word, and leading toward more treatments and ultimately a cure. Her hope for the future is that researchers will come closer and closer to learning more about MG itself, what causes it, how it develops, why people can react so uniquely to it, and maybe even find a link between MG and other, similar neurological disorders. Hopefully this will lead to more solutions and a cure for MG.
Kathleen knows that the most important resource you can have is your support system, and she truly has a great one. She wants to encourage others to find the support they need as they go through MG, through their family, their friends, and others who may be going through a similar journey with MG. It’s important to have a doctor you really trust so you can feel confident in your treatment and to educate yourself so you can have those discussions as you navigate your options and treatment. She is looking forward to meeting and learning from even more people and supporting one another at the 2018 Chicagoland MG Walk on September 23!
Dr. Nancy Kuntz is a child neurologist with additional board certifications in Pediatrics, Electrodiagnostic Medicine and Autonomic Medicine. Dr. Kuntz joined the Departments of Pediatrics and Neurology at Northwestern Feinberg School of Medicine in December 2009 and is Medical Director of the Mazza Foundation Neuromuscular Disorders Program, the PPMD Duchenne Care Center and the MDA Clinic at Lurie Children’s. Before relocating to Chicago, Dr. Kuntz was part of the Department of Neurology at Mayo Clinic Rochester where she did her training in child neurology and clinical electromyography and developed experience treating neuromuscular disorders in children. Dr. Kuntz is interested in the development of less invasive methods of neuromuscular diagnosis in children and serves as site Principal Investigator in a number of clinical treatment trials for neuromuscular disorders in children.
Use the following documents to help spread the world to your network and community about the upcoming Chicagoland MG Walk!
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: