It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
It was 5 years ago that Betty started to experience her symptoms with MG; she keep tripping and falling. Professionally, She was a high school teacher for many years, but back in the summer of 2011, she started to feel very exhausted after the school year ended…much more than usual, despite the hectic year. She started to have a difficult time with daily tasks and felt the need to want to sleep all day. When she accompanied her daughter on a college campus visit, she had a hard time walking the campus for a long period of time and ended up having to wait in the car as she couldn’t complete the tour. At first, she chalked this up to not sleeping enough. That was until one night she had fallen asleep and, upon waking, couldn’t move at all. Betty could not move her arms and legs. Extremely panicked by this, she and her family sought medical attention. She first went to her primary doctor who ran numerous tests, but couldn’t find anything that was wrong. This doctor was part of a larger practice, so Betty was sent to all the different types of doctors offices and emergency room to figure things out what was going on. She went from her primary care physician to the ENT, to the pain management doctor to eventually the neurologist. He did some test to weed things out, such as Lupus, MS, but hadn’t yet concluded it was MG. Meanwhile, Betty’s symptoms started to get worse. She had problems chewing, and one day she was driving and her eyelid just shut closed. She couldn’t open it and had to use her hand to physically hold it open. She went to another neurologist who did a single fiber EMG test, and this is when they started to think it could be an MG diagnosis. Her husband, who is also a medical professional, had started to do his own research. He had read about MG in medical school, but it wasn’t something that you ever really saw because it was so rare. The first week of August of 2011, Betty went into crisis where she had a hard time breathing and her body just shut down. She went to the hospital and was put on IVIG continuously for a week and had to go to rehab to for 2-3 weeks after that to relearn basic skills. Betty was taught how to do personal hygiene stuff, walk, drive, cook, etc. all over again and it took over a year and a half to get her to a place where she could take care of herself again. By October 2012, Betty was feeling much better and was able to have a huge celebration for her 50th birthday! She returned to work but eventually had to retire from teaching due to MG.
As she was going through all of this, she started to look for others out there going through the same thing. She found a support group in her local area, once she got to a good state of health. In this group, they learned more about what MG is, treatment options available, and met so many others who were living with myasthenia gravis as well. This is also how she found out about the MGFA. This year, she attended the MGFA conference in Raleigh, NC and where she learned of all the new research that was taking place. She was part of the MG Walk round table discussion at this conference and knew this would be a great way for her to d her part and help raise funds for the research and advancement she was learning about.
The 2016 DC Metro MG Walk will be Betty’s first Walk and she is excited to be joined by her family, friends old and new, neighbors and coworkers. Her family especially her daughter, who is in PR, has been spreading the word, and she herself has been reaching out through all the mediums (email, text, social media, etc.) She is incredibly honored to be the Local Walk Hero this year, and her best piece of advice for those going through their own journey with MG: Personally, I pray daily. Surround yourself with positive people. It’s a disease where you don’t know what one day will look and feel like from the next. Find a good medical team that you can work with and who will listen to you. Let your family and friends help you and don’t try to do it all on your own. Just take it one day at a time!
She is excited to see everyone at the DC Metro MG Walk on Oct. 2nd. and happy to be taking positive steps to help the MG Community.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: