Come and join us for the 2018 Greater Los Angeles MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!
All that’s left after that is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!
Use the following documents to help spread the world to your network and community about the upcoming Greater Los Angeles MG Walk!
Ironically, Evan Greene’s symptoms began while working out at the gym. This was fifteen years ago, when myasthenia gravis awareness was significantly more muted than it is today, so his solution was to simply workout harder. No matter how hard he pushed, though, his arms continued to weaken, leaving him at a loss of what was going on.
His continued ptosis (drooping) in his eye and emergent double-vision brought him to the eye doctor – and on a journey towards diagnosis that many other MG patients would recognize. There were blood tests, Tensilon tests, spinal taps, a near MS diagnosis – all negative. It took eight months later – in summer of 2003 – but finally an ACH test confirmed a myasthenia gravis diagnosis.
Fast forward to the spring of 2004, had his first of two thymectomies, to reduce his symptoms. While it worked, his symptoms were not completed eliminated. Surgery has improved his vision greatly, but his upper body strength, and his whole physical life has been impacted by his diagnosis.
Upon his initial diagnosis, Evan felt alone and isolated with a disease so few people had. Doctors weren’t able to give him much more information or connect him to other MG patients. Thankfully, he found the MGFA and the MG Walk. Since then, he’s had a front row seat to the emergence of more and more resources for MG patients. Much of that is because of Evan himself. Evan has been a leader in the fight to end MG and joined the MG Walk in its first year, back in 2011, and he and his team have participated ever since. They have done amazing fundraising each year for the Walk, having raised over $85,000 in the seven years they have participated. Evan even participated in a “Dancing with the Stars” fundraiser to benefit his MG Walk efforts and last year his children took to social media to raise awareness with a “Pie in the Face” awareness challenge in support of their dad. Now, in his eighth MG Walk, Evan is ready to do even more to bring awareness and raise funds for MG as our Greater Los Angeles Walk Hero.
Evan is honored to be the Greater Los Angeles MG Walk Hero and looks to inspire others to do more in their MG battle. He says, learning and understanding as much as possible about your MG diagnosis – and connecting to every person and resource possible is key to your MG journey.
Evan is a prime example of how, even though an MG diagnosis can rob you of a lot of your physicality, you can still live – and thrive – with MG…and in Evan’s case, inspire thousands of others to advocate for themselves – and the entire MG community.
If you would like to join us as a local Medical Ambassador, contact the MG Walk Team at 855-649-2557 or firstname.lastname@example.org.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: