It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Use the following documents to help spread the world to your network and community about the upcoming Indiana MG Walk!
Sally was semi-retired after a long, wonderful career as an educator and had planned for an active and engaging retirement years. Sally and her husband, Doug, had completed a 50-mile bike ride and had many hiking and kayaking adventures.
Sally found herself so exhausted after even small tasks and too weak to complete any type of endurance activity. Climbing stairs, lifting objects, and even eating became overwhelming tasks. She began researching her symptoms and found out about Myasthenia Gravis. It took perseverance and many tests to get a sero-negative Myasthenia Gravis diagnosis begin treatments (Mestinon and Prednisone). In October 2014, Sally was hospitalized in the Neuro-Intensive Care Unit, due to an MG breathing crisis. She was started on IVIG treatments along with an increase in Prednisone. Sally continued these treatments but still spent many hours each day in bed with her quality of life greatly diminished.
In 2015, Sally started taking the immunosuppressant, Imuran. After 2 years and some adjustments, this treatment appears to be helping. Sally now has times where she can again enjoy her time vacationing in Lake Michigan with her husband and now and then able to walk on the beach and kayak. These are activities Sally loves and used to do with ease.
The treatments are not a cure.
Sally is also tackling her 4th MG Walk this fall. She knows how lucky she is to have the supports needed to battle this debilitating disease and would like to be – that beacon of hope – for others struggling with the frustrations MG.
Sally’s advice would be to form a relationship with your doctors, find the support group that works for you, and lean on your family and friends to help you through the rough times. She’s a fighter, she’s a walker, and she’s our MG Walk Hero!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today: