It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Once the double vision started and increased within 2 days, she was referred to an ophthalmologist-neurologist who ordered a MuSK test. After 5 months of constant tests, it was finally confirmed that Christi had MG.
Now that she finally knew what was going on, Christi started to learn more about this new diagnosis. She did her own research online and found the MGFA website to be a very helpful resource as she learned more. She also sought out support from others online and met Craig McKendree who had been involved with the MG Walk. They both started a group of those living with MG who get together for lunch once a month as a way of supporting each other. It was here she learned about the MG Walk from Craig, and 2 members of the group even walked on her team last year.
It was important for Christi to get involved as she wanted to meet others in the MG community to learn of their journeys, and to come together to raise the awareness and funds that is so desperately needed to bring us closer to a cure. As it turns out, she was a natural at fundraising, having a lot of success using Facebook to get the word out about her fundraising and why she walks. This year, she’s looking to increase her fundraising even more and hoping to have multiple fundraisers (such as a painting party and wine tasting) throughout the season.
As the Indiana MG Walk Hero, Christi hopes to inspire those in the community to be active in their care. It’s essential to find the right neurologist and not settle for one who doesn’t specialize in MG. It’s also important to find a neurologist who will work with you on your care and will be open to suggestions. Being diagnosed with MG, you will go through the steps of grieving. Reach out to your family doctor, counselor, church leadership, Facebook support groups and MG support groups until you find something that helps you. You will have a new normal for your life, and there will be many times when things are much harder than they used to be, but it’s important to keep a positive attitude. Your family and friends are a fantastic support, but remember to educate them about your disease, limitations, and adaptations. It’s important to be active in the efforts towards raising funds that will go towards new and better treatments, quicker and more confident diagnoses, and ultimately, a cure for myasthenia gravis.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today: