THANK YOU FOR JOINING US AT THE 2016 INLAND EMPIRE MG WALK!
It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Click here to check out the great photos and relive the memories of a great Walk!
We are thrilled to announce that the 2016 Inland Empire Local MG Walk Hero is…Ian Jones!
It was back in the Spring of 2005, as Ian Jones was driving home from work and suddenly had double vision as he looked at the yellow line. He kept having the symptom each day and it just kept getting worse, especially as he was playing in a golf tournament in Palm Springs and it just became impossible to play. Growing very concerned at this point, he checked into the ER and underwent numerous tests such as a spinal tap, MRI, angiogram…everything, to figure out what was causing his double vision. He was sent to an ophthalmologist who said there was nothing wrong with his eyes, and was referred to Dr. Russell Edwards, an ophthalmologist in San Diego. He had seen MG before and used the Tensilon test which confirmed Ian’s MG diagnosis. At first, the symptoms were just ocular and he underwent a thymectomy from which he had a tough recovery. Many treatments didn’t seem to work for him, such as IVIG treatments, and he was eventually put on a very high dose of prednisone. It got to the point where he was out of work for months! He soon saw Dr. Geoffrey Sheean, a neurologist in La Jolla who Ian describes as a doctor who really spends as much time with you as you need. It makes a huge difference, especially for someone just receiving an MG diagnosis. Dr. Sheean eventually recommended Rituxin back in 2013 which has helped keep Ian stable. He also learned about what he could do to help himself. He is a big fan of exercise and eating right, which he feels has helped him tremendously during this journey with myasthenia gravis. He is even now back to work full time again.
In 2012, seven years after he experienced his first symptoms of MG, Ian attended the MGFA National Conference in Las Vegas of which the MG Walk was a part. This was his first time hearing of the Walk, he and participated at the Las Vegas Conference Walk and the one that took place at the San Diego Conference. He’s been involved ever since because he wants to support others who are going through the same thing as he is. It’s important to help fund research and help find a cure, and even though the doctors in South California are great, there’s not much representation for the MG Community. By participating in the MG Walk and serving as the Local Hero for 2016, Ian hopes to help change that and raise important funds for research and awareness for MG patients, and so that more companies start increasing their research in finding the best treatments.
Ian is excited to be attending the walk this year with his personal trainer Dawn Sauber. Dawn’s extensive knowledge has helped him stay strong through exercise and nutrition. As always, Ian will also be joined by his wife Jenny and his two daughters, Summer, 7 and Hannah, 5 whose support has been immeasurable.
The best advice Ian wants to pass along to all those going through their own journey with MG: Remember you’re a partner to the doctor. Don’t ever assume anything, and take control of your experience. He was able to do a lot of research in the beginning and found valuable resources on the MGFA website. He advises you to do your own research and find the doctor that can best work with you and help you with what you need.
MG Walk in the Media!Check out this great article about the newest support group forming in the Inland Empire!
Raise awareness and show your support by downloading our NEW MG Walk Twibbon!
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today: