It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Use the following documents to help spread the world to your network and community about the upcoming Mississippi MG Walk!
Jalealya & Shalealya have barely known a life without MG. They are twins, but it was Jalealya who experienced MG first at the young age of 2…October 5, 2001…a date her mother, Patsy remembers very well. They were at a friend’s birthday party and many thought Jalealya looked very sleepy, especially as her whole face was very droopy. They took her to the ER where it was first thought to be Bell’s Palsy. This led them to an eye specialist who suspected what she actually had was MG, even though it was rare to see it in kids her age. In December she was admitted for testing to be sure, and was diagnosed with MG.
A year later, they were now 3 years old and it was Shalealya who started to experience odd symptoms. She was weak and had problems with her gait. Since her sister had just been through it all, MG was immediately thought to be the cause. Doctors also had said at the time that since they were identical twins, there was 90% chance if one had it, so did the other.
Jalealya and Shalealya are now 19 years old, and it’s been an up and down journey. They’re mother, Patsy, immediately took action once her daughters were diagnosed. She did a lot of research to learn all she could and came across the great resources on the MGFA website. Once the MG Walk came to Mississippi, this was another way for her to make a difference for her daughters and all those living with MG.
This year, Patsy has now taken on the job of coordinating the Mississippi MG Walk. It means a lot to their family to bring awareness to MG as it’s not publicized enough and there are still struggles around getting a proper and quick diagnosis, such as in Jalealya’s case. It’s incredible important to keep educating people on what MG is and what we still need for the future so that we can see more advancements, treatments, and ultimately a cure.
Jalealya and Shalealya are both in college now, but it can be hard as the MG makes them different from everyone else. Being away from home causes a lot of worry for their mother, but she knows they need to grow and follow their own path. As a family, they have been each others’ greatest support, keeping patience and faith through crises, thymectomies, and more. As the 2018 Mississippi MG Walk Heroes, they hope to inspire everyone to not take MG lying down. Stay strong, ask questions, get second and third opinions, and continue to educate yourself so you can be part of the discussions when it comes to treatment. They are thrilled to coordinate the 2018 Mississippi MG Walk and bring others together in love and support as they go through their journeys with MG…and fight MG, together.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: