Come and join us for the 2018 New Jersey MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!
All that’s left after that is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!
Use the following documents to help spread the world to your network and community about the upcoming New Jersey MG Walk!
As a high school sophomore in the fall of 1988, Kelley Devincentis was the image of health. A natural athlete – Kelley skied, ran and played soccer. That was until muscle fatigue began overtaking her during workouts, rendering her limbs as heavy as anvils. Unfortunately these symptoms persisted into the school day, and Kelley found it increasingly difficult to even keep her head up. By the holidays, she was slurring the words to Christmas carols, experiencing double vision which in turn had kids at school thinking she was “drunk”. Not wanting to be labeled the “sick kid” at school, Kelley let the kids around her assume her symptoms were that of intoxication and began her journey to find a solution.
After several misdiagnoses, Kelley learned she had myasthenia gravis, a disease she did not understand nor realizing it was considered a chronic disease; Kelley was just relieved to finally have a name for her mysterious symptoms. However, even with a diagnoses, Kelley continued to mask her MG with medications to alleviate the symptoms and didn’t tell anyone around her. “For years I was unable to perform even the basic human functions like climb stairs, walk, speak, smile, stand or swallow my own saliva. Even though I started the take medication to help alleviate the weakness, it failed me and I had no choice but to go on life support three times.” – Kelley.
It took Kelley years to overcome the stigma she attached to the disease. By college, the marketing major found the prospect of giving oral presentations was daunting. “I had such bad slurred speech one day, I had to break down and tell everyone that this is what I have. I realized I shouldn`t be ashamed. It`s something that happened to me that I had no control over.” – Kelley.
Kelley has since then made it her goal to step out of her comfort zone and give a voice to myasthenia gravis. In January of 1998 during one of her many stays in ICU, Kelly got the idea to start a Walk-A-Ton in her local New Jersey town. Just five months later, with just $100 of her own money, Kelley was able to gather friends, family and even strangers to execute that first New Jersey Walk-A-Thon; and the results for a first time walk were staggering. With just over 100 people attending, Kelley’s event raised over $11,000!
Because of Kelley’s vision, the New Jersey MG Walk has continued on for over 20 years, and today she actively reaches out to others who are newly diagnosed with MG. Kelley is also a proud mother of a 8 year old son, who proudly sits with her during her IVIG treatments – and thinks she is the strongest mom in the world!
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: