Come and join us for the 2018 Northern Wisconsin MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!
All that’s left after that is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!
Hayden’s journey with MG begins 5 years ago in 2012 when Hayden was your typical 7 year old
boy who loved to play soccer and baseball. However, as 2012 continued, his parents began to
notice that his eyes appeared droopy; a trait not typical of a boy about to celebrate his 8 th
birthday. Concerned, Hayden’s parents kept a watchful eye over him – debating if a sleep study
was necessary. However, as time continued, Hayden’s family and friends grew increasingly
alarmed to find him slurring his words and experiencing double vision at school.
The Monday before Hayden’s 8th Birthday, his symptoms had reached their peak, and his
parents asked his elementary teacher to observe Hayden and alert them if the symptoms
progressed. By 10:00am that same day, Hayden’s parents received a call from his teacher saying
the words that no parent wants to hear…”something isn’t right”. Hayden’s parents rushed
Hayden to his local pediatrician. Luckily, Hayden’s pediatrician wouldn’t let him out of the
office until he spoke with Dr. Edgar, a Pediatric Neurologist. A CAT Scan and MRI provided no
answers to what was causing Hayden’s mysterious symptoms. An appointment was scheduled
with Dr. Edgar 3 days later, on Wednesday of that same week (3 days before his 8 th birthday).
Hayden’s Pediatric Neurologist was confidently able to diagnose him with MG within 45
minutes of meeting him, thanks to his experience with the disease.
Hayden was lucky to be diagnosed with MG within 3 days of seeking medical help, even though
there were symptoms were sporadic for over a year prior.
Hayden is now 13 years old and loves martial arts, working toward his black belt. Both Hayden
and his family are active members of the North Wisconsin Support Group and MG Walk
Community. Hayden’s advice to other kids with MG is to be strong and do what you want to do.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: