It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Rebecca first experienced her symptoms of MG at the very young age of 2, and back in 1956 when there was very little known about it. Though she was too young to remember, the first cause of concern became when she stopped breathing. Luckily, her father who was a firefighter had just learned the new CPR technique and did that all the way to the hospital, saving her life. Her lungs started to recover, but since they didn’t know what was wrong with her, she was sent home. It took another 26 years after that before she was diagnosed with myasthenia gravis, experiencing an array of symptoms throughout her childhood and young life. As a child, she failed her gym class because her legs were too weak to do the required somersault and she would trip sometimes when she couldn’t lift her legs while walking. Double vision showed up frequently as did issues with swallowing and chewing. As she reached adulthood, she realized her heart rate wasn’t recovering as quickly as it should have after the aerobics class she taught. Rebecca had three kids, all experiencing some symptoms for a short period of time after birth, but became better after a few months. It became very clear she needed to find out what was happening when she tried to pay for groceries one day and physically could not open her fist with the money to pay the cashier. This episode sent her to a rheumatologist who put her in the hospital to complete some tests. The tests proved conclusive for MG and she was told she needed an immediate thymectomy.
MG has never been something to stop Rebecca from living her life. Through the symptoms, setbacks, and remissions, she grew up, went to school, became a chemical engineer and had a family. In her early stages of diagnosis, she sought out support groups to meet others going through similar journeys and to learn how to live with this disease. Today, she is that support for so many others as she is the leader of two MG Support Groups in Ohio, one on the eastside with a group of about 20 and one on the Westside, a group of about 30.
It was through a member of the group that she first learned about the MG Walk, getting involved when it took place in Cleveland for the first time 2 years ago. Through the Walk, she connected with Drs. Ruff and Li and became even more actively involved with the MGFA.
As the 2018 Ohio MG Walk Hero, Rebecca hopes to inspire people to take action and get involved. The MG Walk is a great way to meet people that are living with MG and come together to raise the funds that will go towards local support, more educational resources, and research for better treatments, quicker diagnoses, and one day, a cure. Rebecca finds so much hope in hearing the stories of others and meeting people that are thriving in their lives. She hopes she is that same inspiration to others and looks forward to walking and fundraising alongside those in the community at the MG Walk on Sept. 22!
Manager, Neurophysiology Labs
Patient Services Representative
Use the following documents to help spread the world to your network and community about the upcoming Ohio MG Walk!
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today: