Come and join us for the 2018 Portland MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!
All that’s left after that is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!
Use the following documents to help spread the world to your network and community about the upcoming Portland MG Walk!
“The beginning was a nebula of confusion.”
Around 2011, Zach knew something was up when his hands started ignoring his brain, and he found himself unable to do the simplest tasks. (The one silver lining was that not being able to tie his necktie meant that he didn’t have to wear them anymore.) The seemingly minor symptoms that followed didn’t immediately give him concern; he chalked it up to “getting older” even though he was just beginning to knock on forty’s door. But finding his legs suddenly giving out, and a sudden inability to chew meat, were not normal “getting older” symptoms. Once double-vision emerged, it was time to go to the ER.
Unfortunately, Zach was dismissed by his doctor during his first visit to the ER as only having a migraine, even though Zach had no pain or other signs similar to that of a migraine. His strange new symptoms only worsened over time. Slurring words and increased muscle weakness became the norm, and the self-described “biggest nerd in the world” found himself using a scooter to maneuver around various conventions. Zach knew in his gut that something wasn’t right, and quickly found himself becoming a bigger mystery than any of the storylines in his beloved fantasy novels and comics.
It took Zach four years to even get a provisional Myasthenia Gravis diagnosis. That was followed by three MG crises that hospitalized him in 2016. Ever the optimist, Zach credits the MG crisis in summer of 2016 for getting him out of packing, as he was preparing to move to a new house in Oregon specifically designed to maximize his mobility.
Zach has spent the years since his move seeing specialists, undergoing tests, and fighting with insurance for the right to solve the mystery that was happening in his own body. A real turning point came when Zach discovered his local MG support group and the Portland MG Walk. Joining this group of people to lean on and learn from — all living with the same disease, all experiencing the same frustrations — has helped Zach become a better advocate for himself, and for all MG patients. The MGFA and the Portland MG group are lifelines that have helped him in more ways than he can count.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: