Come and join us for the 2017 Portland MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!

All that’s left after that is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!

PLEASE NOTE: In order to view the most “up to date” fundraising totals on this page, please refresh your browser (or hit ctrl+F5). Thank you!


We are thrilled to announce that the 2017 Portland MG Walk Hero is…Mistie Gillespie!
 


Mistie’s diagnosis and start with MG was a very difficult one. Back in early spring of 2012, she had been experiencing a lot of respiratory issues and what she thought was a cold that would not go away. She found herself in the ER quite a few times, sent back home with antibiotics, just to end up back in the ER with the same issues. During an ER visit in the summer of 2012, they did find a large thymoma, which they thought was lymphoma at first, but a biopsy confirmed the thymoma and surgeons wanted to take her thymus out. Because of the extreme respiratory issues and the cough, they couldn’t do surgery until she got better.  Mistie endured extensive testing and treatments for the undiagnosed respiratory issues, including sinus surgery and pulmonary testing.  She was even oxygen dependent at this point at the age of only 37. When the pulmonologist requested invasive lung tissue biopsies, the surgeon agreed to a thymectomy and biopsy.  After the thymectomy, a short blast of steroids brought renewed health and strength, but with the taper, her symptoms came back, worsened, and new ones emerged. Seven months after her thymus was removed, her eye started to droop and her left hand had actually stopped working. Back to the ER again, she received a neurology consult who ran tests and definitely diagnosed her with Myasthenia Gravis…more than a year after she started to experience her first symptoms.  A swallow study confirmed that the extended respiratory issues were due to undiagnosed MG, which caused dysphasia.  With a year of aspirating fluids into the sinus and lungs, the long-suffered respiratory issues were now understood.

The trials that Mistie and her family went through were unnecessary as the right knowledge and the right tests would have given a quicker diagnosis and a faster road to the right treatments. Awareness is so important to make sure that everyone, including medical teams across the country, know what MG is, can recognize it, and diagnose it confidently and quickly. Mistie’s efforts in awareness and advocacy since her diagnosis is with the hope that no one has to go through a year of uncertainty and fear as she and her family did. She brings MGFA awareness posters to every doctor she has worked with, including a personal note to make sure they know how important it is to be knowledgeable of MG.

She takes her participation further by getting involved and fundraising for the MG Walk. Not only is she working hard to raise the funds needed for important resources for those living with MG, but it has become a great point of support for her in her journey. The camaraderie of fellow MG patients as well as getting the chance to hear their stories and experiences has been truly amazing. You know you are not alone and become inspired by the people around you.

Mistie is excited to be the 2017 Portland MG Walk Hero and inspire others living with MG. She wants others to know that it can be overwhelming, and there are tough days you’ll face, but there are also wonderful days to be lived. There are days where you may feel weak, and days where you do things you never thought you’d be able to do. She will be walking with her greatest support system, her family, who have always walked by her side (figuratively and literally) even on the days that are very hard. Mistie has a very supportive husband, two young boys who fill the days with joy and a large and amazing extended family.  She looks forward to walking with them, and the strong Portland MG Community towards more awareness, quicker diagnoses, better treatments, and, one day, a cure!


Thank You to our 2017 Portland MG Walk Medical Ambassadors!
 

Dr. Amy Visser
Oregon Health & Science University


Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!

On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!

Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!

MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123

If you have questions or want to know more, contact us today:
1-855.MG.Walks (1-855.649.2557)
Info@MGWalk.org

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Summerlake Park, Tigard, OR

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Summerlake Park, Tigard, OR 45.437362, -122.809199

Thank you to our sponsors!
 

Goal: $20,000
40 percent raised
$7,000 raised so far
in Portland
$13,000 to go!

Updates

Checks should be mailed to:

MG Walk Office 1707 N. Randall Rd, Suite 200 Elgin, IL 60123
Please include the participant, team, and Walk location in the memo section.