It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
For the first 2 years of her diagnosis, she didn’t know of anyone else who had this disease. Her family was very understanding, but it was definitely hard being away at school. She had been doing IVIG and on doses of Mestinon after her thymectomy which allowed her to work, study, and even still play sports. Eventually, insurance started to deny her IVIG treatments, and, not wanting to turn to more aggressive therapies, such as steroids, she started to really grow concerned about what to do with her situation. She took to the internet and found Natalie McGill, Kathie Bibeau, and the online support groups. She finally felt like she had someone who she could ask all of her questions to and she received so many helpful resources. They told her about the MGFA and the conference that was being held in San Diego that year. Julia was fortunate enough to receive a scholarship from her university to attend where she met others going through their own journeys with MG. She participated in the Walk and also met Dr. Charlene Macko, which lead to an incredible internship.
Julia started to work with Dr. Macko on a cause very near to her: exercise and MG. They started a new research study on the prevalence of falls with MG and which activities cause the most fear of falling. From there, they published a paper about which exercises can be the most beneficial to those living with MG and another one about to be published on promoting exercise in the home and the safest way to complete them. They even saw the amazing results of their research when they helped give significant independence and movement, through these exercise regimens, back to someone who was wheelchair bound. As someone who has always had exercise as a huge part of her life, Julia is looking to continue to do more research in this area and focus on the exercises that will bring the most function back at various levels of MG.
She continues to stay involved with the MG Walk and will be at the Portland Walk this year with her family. She’s looking to grow her team and the participation and getting local neurologists involved in the Walk as well. As the Local Walk Hero, she wants people to know how important it is to meet others going through MG, to hear their stories, see their support systems, and continue to fundraise and rally to find a cure for this disease. The money raised is so important as research is going to be how we find a cure and improve the quality of life for so many. She will continue to be someone who works hard to help those going through their own diagnosis and fund and conduct research and therapies that are truly making a difference!
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: