It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Use the following documents to help spread the world to your network and community about the upcoming San Diego MG Walk!
It should’ve been the best, most carefree time of Saadia Esmail’s life, but in the spring of 1999, Saadia was graduating college and traveling abroad when she noticed her first MG symptoms: a physical change in her eyelids, double-vision, and an asymmetrical smile.
Upon her return to the States, she was embarking on the job search that would launch her career. However, interview after interview, she was unable to look her potential new bosses in the eyes, self-conscious about the droopiness in her eyelids. These symptoms were starting to affect her employment opportunities, which is what brought her to an ophthalmologist and then, ultimately, a neurologist.
A pre-med student, Saadia was confused about why her disparate symptoms resulted in visit to neurology, but nevertheless, she met with Dr. Katz and it became clear that she had Myasthenia Gravis. Even as a pre-med student, this was a disease she had never even heard about before that moment.
Although her traditional Pakistani family was worried about the disease and how it would affect Saadia socially, Saadia has been, and continues to be, a vocal advocate for the disease. She’s been through the gauntlet of medication and surgery such as prednisone and a thymectomy which have kept her symptoms mostly at bay, as well as bouts of MG crises that have led to hospitalization.
It took eight years of getting the MGFA newsletter for Saadia to commit to joining her first MG Walk. She and her husband do a lot of hiking, so something active like the MG Walk seemed like a great way to get involved. She was excited and walked that first year with her two daughters. In 2016, she brought the whole family, and enjoyed the experience of meeting, connecting and supporting with many other MG patients. The MG Walk has also been a great way to introduce her children (ages 12, 10, and 5 ½) to what she is going through and educating them on her disease.
As the 2018 San Diego MG Walk Hero, Saadia is thrilled to once again walk with her family on November 18, and continue educating them and others about MG. When she was first diagnosed, only 1 in 100,000 people had MG, so it’s important to keep raising awareness for a disease not many know about. As more people learn what MG is all about, this will lead to quicker diagnoses, better treatment options, and hopefully one day, a cure, as we all work together to tell of our experiences and raise the funds needed for all those living with MG. The MG Walk is a great time to come together, rally for the cause, and learn from each other’s experiences as having support and showing support are crucial for those living with MG every day. She looks forward to seeing everyone at the MG Walk on November 18!
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: