Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Myasthenia gravis is a very new experience for Father Ted Monica. It was only a little over a year ago, back in Sept. of 2015, that went in for a surgery, but started experiencing slurred speech very shortly after. Doctors thought he was having a stroke, and then two weeks later, his left eye started to roll to the inside of his head. It was because of this very strange symptom that he was sent to a neuro-ophthalmologist who ran a series of tests, including a blood test and nerve conduction test, and made a very confident diagnosis of MG. Unfortunately for Father Ted, his MG has progressed very quickly over a short amount of time since diagnosis. Once the Rector of Holy Comforter Episcopal Church in Tallahassee, he has now been on disability since December and unable to continue working. His disease, however, certainly does not keep him from being a support to others going through their own diagnoses.
Last year’s Tallahassee MG Walk was Father Ted’s first. One of his parishioners read about the Walk in a local newspaper, the Tallahassee Democrat, and immediately called him. Even though this was all only a week before the Walk, Father Ted signed up, reached out to his parish family about his participation, and because of their outstanding support, he ended up raising over $1,500 in that one week. A number of people from his church even joined him at the Walk last year.
It was at this Walk that Father Ted talked to a few others who were living with MG, and they all realized how much a support group in Tallahassee was needed. So, wanting to be the most support he could be for others, Father Ted started the first Tallahassee MG Support Group, which meets on the first Tuesday of every month at the Ashford Club at Betton and, it has been growing ever since.
While he doesn’t think of himself as a hero, he is certainly doing everything in his power to raise important funds and awareness for MG. He is excited to participate in the Tallahassee MG Walk again this year and is going to walk as much as he can, even though his MG has made it difficult. He is counting on the continued support of his Church family and hopes some will join him in the Walk this year.
His advice for those going through their own journeys with MG is to make sure you have a physician that understands your illness, and that you understand how the disease affects you as well. Educate yourself, as well as help your friends and family understand it more too. And be your own best advocate. The most important thing to remember is you do not have to go through this alone. Reach out and know there are people who can be a tremendous support to you. For Father Ted, he is so deeply grateful for the friends and family that have loved and supported him through all of this and continue to do so. His faith in God and his family through the church have shown him he is never alone, and he continues to work to make sure others with MG feel the same way.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
Checks should be mailed to: