Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
She had waited a while in the beginning to see how things progressed and not jump to the ER with every symptom, but eventually she experienced an MG crisis. Josie was admitted to the hospital where she spent 2 weeks in the ICU. After bouncing back, she wanted to make sure she knew more about this disease she had never heard of before and started to take to the Internet to find all the information she could. Josie also wanted to find a way to make more people aware of MG. She had never known about MG and its effects on her life and body, and wants to make sure others are more informed from the very start. As a runner of 5K events, she knew there had to be some type of fundraising and awareness event, and that’s when her search led her to the MG Walk.
In 2015, she participated in her first MG Walk in Tampa Bay and for the first time was able to meet others going through a similar journey. She was so impressed and inspired by the strength and encouragement she saw and learned by the stories of others. As the Tampa Bay MG Walk Hero, she wants to share her story to inspire others and make them more aware sooner. Many people with MG may not look sick, and it can be so hard to know what each person living with MG is going through. By raising more awareness of this disease, she hopes people will understand a little bit more about what a person living with MG goes through, offer support, even at times when it can be hard to realize your loved one is going through something, and take the action needed towards a world without MG.
Josie has had great support from family and friends as she goes through MG and as she raises the necessary funds and awareness to help the MG community. As a fighter, Josie’s advice is to never give up. There are people out there and if you need help don’t be afraid to reach out. Someone will be there to support you. And above all, have faith and don’t stop believing!
Dr. Weiss has been in practice in St. Petersburg since 1993. His neurology practice has a primary focus of caring for patients with neuromuscular diseases including myasthenia gravis, and has had the good fortune to have cared for more than 1000 patients with MG He received his M.D. from Drexel University and completed his neurology residency at the VA Medical Center, West Los Angeles in 1991. He then completed a two-year neuromuscular diseases fellowship at the University of North Carolina, Chapel Hill where he was able to develop an interest in the care of patients with myasthenia gravis under the guidance of Dr. James F. Howard, Jr. He has served as MDA Care Center director since 1994. He has served as medical advisor for the MGFA West Central Florida chapter(which became the Greater Florida chapter before becoming the St. Petersburg support group) since its inception in 1995. He has also served on the MGFA Medical/Scientific Advisory Board since 1996. He was honored as the recipient 2006 MGFA Doctor of the Year award. He has been a member of the MGFA Board of Directors since 2011.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
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