It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Use the following documents to help spread the world to your network and community about the upcoming San Diego MG Walk!
MG WALK SOCIAL MEDIA BANNER – Tennessee *Coming Soon*
Sharon’s journey with MG started only 5 years ago, back in May of 2013. She was lucky that her diagnosis came quickly as she had a very knowledgeable eye doctor who knew right away it was MG. She had been experiencing the classic MG symptoms of droopy eyes and double vision, and she even wobbled when she walked. She went to a neurologist at first thinking it could be fibromyalgia or something else, and was sent to an eye specialist in Tennessee. The minute he put his machine up to check her eyes, he knew it was MG. She was sent back to her neurologist, which is what he suspected as well. She was put on prednisone, but had an allergic reaction so today, she is only on Mestinon.
A few years ago her neurologist retired and Sharon found herself with a new doctor, one who was less familiar with MG. Because Sharon didn’t seem to exhibit signs of MG at her appointments, her new doctor was reluctant to believe she even had myasthenia gravis. Sharon is also sero-negative, so MG was not showing up on her blood work. Sharon ended up showing her photos she had taken when her symptoms were present as well as recordings of her slurring her words which did end up changing her neurologist’s mind.
Sharon knew that it was important to get involved and raise awareness for MG, seeing first hand that even those in the medical field aren’t as educated on it as they can and should be. Originally thinking she was the only one in Knoxville living with MG, she was eventually approached by the MGFA to be the support group leader in Knoxville, and she quickly realized others were affected by this as well. She has put forth a lot of effort to raise awareness for MG, including getting a day of recognition from the state and lighting up bridges in teal. Wanting to do even more, she decided to bring the MG Walk back to Tennessee to continue raising funds for more awareness and better treatments.
Coordinating the MG Walk has allowed her to spread the word about MG even farther and really feels like more and more people are becoming educated on what myasthenia gravis is. People ask her what the MG Walk is about and it has opened these opportunities to educate the general public, when most had never heard of it before.
As the Tennessee MG Walk Hero, she hopes to inspire those living with MG to have a positive attitude. There will be days when you need rest, but movement is important to. While many days can be tough, she always remembers “Tomorrow is a different day, and maybe even a brighter day.” This has helped her through many hard days and she plans to keep having hope and keep fighting for a brighter day for all those living with MG.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: