It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Click here for directions to Hunter’s Point South Park (Address to park is 3502 Borden Ave, Long Island City, NY 11101)
Click here for additional directions and travel options (parking, subway or East River Ferry)
Use the following documents to help spread the world to your network and community about the upcoming TriState MG Walk!
After almost 29 years of working with Citigroup as a Human Resources professional, Sue Klinger slowly began to notice that her fingers began to have trouble typing, and symptoms with her eyes began to develop. Faced with an approaching layoff within the company – Sue did not have time for her job performance to be hindered by the mysterious symptoms and immediately went to her local eye doctor for a solution. Baffled, her local eye doctor recommended she go to a Neurologist for further evaluation. Unfortunately she left both offices with no diagnoses. Not one to give up, Sue asked her Primary Care doctor for a referral to a different neurologist. It was with that neurologist that Sue was finally diagnosed with myasthenia gravis and began IVIG for the next 15 years.
IVIG was not an easy journey. Sue had heard that she may experience small headaches while on IVIG, however, instead she began to experience extremely painful headaches. Eager to find a support network, Sue went on online, and found the MGFA, and the local New York Metro Support Group in 2004. It was there that Sue found her community. The local chapter leader gave assurance that she was not alone in her headaches, and gave advice on how to treat them. From then on, Sue knew she wanted to get involved, and transition from her background as a corporate employee advocate to a patient advocate. It was in this moment that would many would argue Sue’s “second career” as a “medical geek” was born.
With support from the established New York Metro Support Group, Sue founded the New York City Support Group, and made it her business to learn everything about myasthenia gravis that she possibly could so that she could help other patients through the beginning of their journey with MG, as well as help to educate the medical community. Today her New York City Support Group is thriving, and if you asked any of her members, they would argue that the only difference between Sue and your average neurologist, is that Sue does not have MD next to her name.
In 2008 Sue was invited to be on the MGFA national board, and now currently serves as the Vice Chair in 2018. During her time on the board, Sue uses her 29 years of corporate experience to recruit other Citigroup alumni to become involved with MGFA, as well as advocated for updated MGFA branding and the creation of a MGFA Facebook page.
“Facebook has been incredible in identifying people who are willing to step up and volunteer – as well as finding new patients. There is a lot going on in the myasthenia community – all for the good. More has happened in the last 5 years, that the last 60.” – Sue Klinger
Northwell Health Center
Hospital for Special Surgery in Manhattan & Weill Medical College
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today: