Come and join us for the 2019 Austin MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!
All that’s left after that, is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!
PLEASE NOTE: In order to view the most “up to date” fundraising totals on this page, please refresh your browser (or hit ctrl+F5). Thank you!
SPREAD THE WORD!
Use the following documents to help spread the word to your network and community about the upcoming MG Walk!
I had minor surgery in September 2006. I was scheduled at 10:00 am, out by noon, home by 4:00 pm the same day. I stayed three days in intermediate care at Downtown Seton Austin Texas. No one could wake me up and no one knew why.
After the surgery, I had no energy. It was as if my body was not listening to my brain, so I made an appointment with my family doctor, he sent me to a neurologist. Before my appointment with the neurologist, I started having problems breathing and swallowing. By the appointment date, November 20, 2006, I had severe double vision, my hands weren't functioning, my face was drawn, and I drug each leg from one point to the other.
The neurologist sent me to the hospital to have an MRI, X-rays, CT scan, and so many other tests. They tested me for everything. “Sorry, Ms. Joslin, you have MG.” After several hospital stays, permacaths and plasmapheresis, the neurologist told me that there was nothing more that could be done to make me feel better. I started looking for another doctor Dr. Adam Horvit in Round Rock Texas suggested IVIG (Intravenous immune globulin). The IVIG treatment is a blood product administered intravenously. It contains the pooled IgG G extracted from the plasma of over one thousand blood donors. IVIG's effects last me about three weeks.
When I first was diagnosed, I went on the internet to attempt to learn about MG. I bought several books and found that the National MG Foundation was a great source, but there was nothing local. This is the reason Larry and I started the Myasthenia Gravis Support Group Central Texas in February 2007. Facilitating The Central Texas Support Group has been an amazing experience.
I have made so many good and wonderful friends and learned so much from people that come to the meetings. Everyone that comes has gone through different hardships with MG. There are so many successes in our group. Several people have had MG for many years and live normal lives.
We all must remember that each MG patient is different and each treatment is different. This is why it is called the Snowflake Disease. Sometimes it takes awhile for the treatment to work. MG’ers have to do things a little different to save energy. We must plan our day.
We meet every second Wednesday of the month at the Spicewood Springs Branch Library in Austin Texas. Feelings, ideas, saving energy and living with MG are topics that we talk about during the meetings. We share our secrets and tricks for living life with MG. We’ve had many speakers that have shared all the new stuff for MG.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG and commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today: