THANK YOU FOR JOINING US AT THE 2017 COLORADO MG WALK!

It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.

Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!

Click here for photos from the event and relive the memories of a great Walk!

PLEASE NOTE: In order to view the most “up to date” fundraising totals on this page, please refresh your browser (or hit ctrl+F5). Thank you!


We are thrilled to announce that our 2017 Colorado MG Walk Hero is…Kristina Voskes!
 


Kristina’s start to her journey with myasthenia gravis was a very whirlwind experience. Back in March of 2012, she was teaching 8th grade language arts, when one day she turned around and her classroom was completely blurry. Not wasting any time to figure out what was going on, she made an appointment with her ophthalmologist. The first thought was that this could be multiple sclerosis, but tests for that proved negative. She was then sent to  a neuro-ophthalmologist who immediately diagnosed her with ocular MG. This diagnosis came only weeks after her initial outreach to doctors, and within a month from there, she had her thymus removed and was put on medication. About a year after her thymectomy, her MG quickly developed from ocular to generalized, but  she has had significant flare ups in the past few years (at one point she had one every 5 weeks), she has been started on IVIG treatments and is doing significantly better than she was a year ago. She is even able to receive her IVIG at home, which has allowed her to continue working and to avoid long hospital stays. Finding a balanced and sustainable exercise routine has also played a huge role in the maintenance of her MG, especially her gym, Barre3, which has helped her tremendously in maintaining her health, even through the times when MG can flare up and make exercising difficult.

She and her family had heard of MG once before, as her mom’s first patient while in nursing school had MG, though there were a lot of unknowns at that time. There were many unknowns still to Kristina, so she did a lot of research to learn more about this new diagnosis and the support available to her. She came across the MGFA where she learned of the MGFA Walks and got involved right away. She has continued to remain an active fundraiser and participant once she moved to Denver, now taking part in the Colorado MG Walk the past few years.

Everything happened very quickly for Kristina, and she very soon saw a drastic change in her life because of myasthenia gravis. There are day to day challenges that you face, that not everyone around you may understand, but getting involved in the MG Walks gives her that chance to meet others going through similar experiences and allows her to draw strength and inspiration from their stories.

As the Colorado MG Walk Hero, Kristina hopes to share her story and bring that same strength and inspiration to others. When she was first diagnosed, she was very private about the diagnosis, feeling that if she talked a lot about it or made it a focus in her life that she was giving strength to the disease. Because of the support she has found, the people she has met, and the stories she has heard, she now realizes that sharing her own story and educating others makes her more powerful than the disease. She hopes that those that are going through their own diagnoses never lose hope. It can be overwhelming, especially the unknown of what this disease can mean for the future, but we are making strides forward every day towards better treatments, more awareness, and ultimately hope for a cure.

Kristina is excited to be at this year’s Colorado MG Walk with her amazing support system…her family! They have continued to stay optimistic and have continued to look toward a bright future. They’ll be there in full support with Kristina on October 8!


Thank you to our 2017 Colorado MG Walk Medical Ambassadors!
 

Dr. Karen Karwa
National Jewish Hospital and Blue Sky Neurology

Dr. Karen Karwa was born and raised in Mumbai, India. She attended medical school at Lokmanya Tilak Medical College in Mumbai. Dr. Karwa completed her neurology residency at the Medical University of South Carolina where she served as Chief Resident.  She continued on to the Cleveland Clinic in Ohio to complete a fellowship in Neuromuscular Medicine.  During her fellowship she worked as a Clinical Instructor in the Department of Medicine at the Cleveland Clinic Lerner College of Medicine. Dr. Karwa joined National Jewish Hospital and Blue Sky Neurology in 2016 to practice outpatient and inpatient neurology in Denver.

Dr. Karwa developed a great interest in Myasthenia Gravis during her neuromuscular fellowship and has been caring for patients with Myasthenia Gravis (MG) for the past five years in the inpatient and outpatient setting.

“There are a number of success stories of patients with MG and how their fight to overcome their disease inspires me. What drives my interest in MG is the ability to make meaningful improvements in the quality of life of patients with MG. I heard of the MG walk during my residency and fellowship training. I have been impressed by the efforts made towards spreading awareness in the community and the mission of improving treatment options and finding a cure for this condition. I would like to join this cause to fight myasthenia gravis together.”


Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!

On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!

Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!

MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123

If you have questions or want to know more, contact us today:
1-855.MG.Walks (1-855.649.2557)
Info@MGWalk.org

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Thank you to our sponsors!