Come and join us for the 2017 Connecticut MG Walk as we continue taking “steps” toward the ultimate finish line…a world without Myasthenia Gravis! Register now to join an existing team, or to start and Captain your own!
All that’s left after that is to create and customize your FREE personal fundraising page, share your connection to Myasthenia Gravis and start fundraising!
Tom Anderson experienced his first symptoms of MG when he started to get double vision back in April of 2013. In order to figure out what was going on, he found his way to Dr. Kostina- O’Neil, a neuro-ophthalmologist at Yale. After completing a few blood tests, she diagnosed him with ocular MG. Dr. Kostina-O’Neil referred Tom to Dr. Nowak, a neurologist at Yale, who put Tom on a mestinon and prednisone regime. About a year later, in March of 2014, he experienced a generalized MG crisis. He couldn’t lift his arms or comb his hair, and ended up in the hospital for 4 days on an IVIG treatment. Under Dr. Nowak’s care, he was put on Imuran, and now, almost three years later, he is feeling really great on just this one medication.
Many people going through diagnosis have never heard of MG before, but Tom’s daughter had a friend whose mother was also diagnosed with myasthenia gravis. Her mother was not properly treated while vacationing in Florida and did not survive an MG crisis. Tom’s family realized this could happen to him, so they made sure Tom was receiving the best care and that his family learned all they could about MG. While in the hospital for his crisis in 2014, Dr. Nowak introduced Tom and his family to the MGFA and the MG Walk. It was this year that Tom and his family and friends participated in the Connecticut MG Walk for the first time, which was also the first year for the Connecticut MG Walk. It is important for him to be involved, especially to raise money for new treatments and medications for MG. When he was first put on Imuran, the medicine that is actively keeping his symptoms calm, he learned it was originally for kidney transplants. Research showed it could be used to treat MG and other autoimmune diseases. That’s why it is so important to raise funds for this type of research that can lead to even more treatments. He also wants to bring more awareness so others know how serious MG can be, but also let others know there are many success stories out there.
As the Connecticut MG Walk Hero, he wants to inspire those going through their own diagnosis to educate themselves. Visit the MGFA site and learn about the medications and procedures that can affect your disease. Tom always brings a printout of medications that adversely affect MG from the MGFA site to his doctors and dentists who appreciate the information. Talk with others, work with your doctors, learn all that you can, and, most importantly, never give up.
Tom is excited to be joined by his whole family, including 7 grandchildren, at this year’s MG Walk, and looks forward to meeting even more people in the MG Community, learning their stories and ways we can all work together to move our mission forward.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
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