It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Use the following documents to help spread the world to your network and community about the upcoming Houston MG Walk!
It’s only been 4 years that Meena has been living with myasthenia gravis. Being a paraplegic for 18 years due to a spinal cord injury, Meena was thrilled when she finally found a wheelchair that worked on the beach, having missed so much spending time there. She was in Pensacola, FL, four years ago, enjoying an entire day on the beach, but had trouble seeing the very next day. Concerned by this, she went to the ER to get checked out, but all tests came back negative. Once back home in Houston, she started her search to find the right doctor that could explain what was happening. It was in August of 2014 that she found a neurologist and was diagnosed with ocular MG.
She was diagnosed in August, started doing research on MG in September, but as early as October, her health became even worse. It was to the point she needed her husband and mother to help her in doing the most basic tasks. Once Meena found the support group in Houston, her life was changed for the better. At the time, she was reading a lot about MG, and a lot of what she was reading really scared her. She was having a hard time finding the right doctor and the right treatment for her, and was reading about the extreme cases and worst-case scenarios. Once she found the support group, she found hope. The positivity and learning the stories of others from those who were living it really made a world of difference.
It was through the Houston MG Support Group that Meena met, and found a great support in Rachel Higgins. Rachel had been working hard in building MG support groups in areas of need in Texas and saw a leader in Meena, asking her to be the lead in Houston. Meena has always been involved in helping others, especially after her injury, and was ready to help those going through their own journeys with MG.
Today, Meena has been doing very well. She found a doctor who has gotten her on the right treatment plan for her and has a plan to hopefully get her off the steroids she had been taking. While it was an MG crisis that led her to finding this path, she now feels she is on the right track, feeling good about her treatment, and starting to get a lot of her upper body strength back.
As the Houston MG Walk Hero, Meena wants to inspire others with her story and let others know that there is hope. She has always been a big advocate of finding resources and information and hopes that in sharing her story she helps others living with MG find the answers or direction they need as well. It means so much for her to help others and be a great support, as it was the love and help of others that has helped Meena tremendously along the way. She is very excited to spread the word about MG and raise the funds that will help lead to better treatments and more answers to the still unknown questions about MG. Meena and her family look forward to joining everyone on November 17!
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: