THANK YOU FOR JOINING US AT THE 2016 HOUSTON MG WALK!
It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Click here to check out the great photos and relive the memories of a great Walk!
We are thrilled to announce that the Houston MG Walk Local Hero is…Tracey Young!
Only just a year ago, in the summer months of 2015, Tracey Young was en route to Army Reserves drill weekend. She was just 10 minutes into the drive to the base when, all of a sudden, she became short of breath and her heart started racing for reasons she couldn’t figure out. This was completely unprecedented for her, but she knew something was wrong and decided to get checked out by the medical unit. She was only 2 exits from the base when she started to black out and knew she needed to call for help right away. She pulled over and a triage nurse from her unit came to meet her and called 911. Once EMS arrived, they thought her symptoms mirrored those of anxiety or side effects from taking supplements. Well, she hadn’t been taking supplements, and knew this was not anxiety, so Tracey decided to still be taken to the hospital even though medics thought there was no real issue at the time. That was, until they arrived at the hospital, and her EKG revealed an arrhythmia she had never experienced. This could have been caused from gasping for air for so long during this episode. Since this was a new symptom for Tracey, she was admitted for numerous tests. Numerous cardiac tests were performed and every result returned normal. The doctors ran an anti-musk test which actually came back negative, and she was then discharged from the hospital with instructions to follow up with a local cardiologist. It wasn’t long after she got home that Tracey started to experience shortness of breath even worse than before and was now having a hard time even walking. Her right eye started to droop more drastically as well. (Looking back, it always had a slight droop, which she never thought about, but now she understands this was likely an initial sign manifested years earlier). This was just one of many symptoms she was experiencing that was a real cause for concern. She had even had issues swallowing for 4 years, which she also never thought about (attributing it to likely eating too quickly), but now things were progressing. She immediately went to the emergency room and was again admitted for reasons which were considered cardiac. Her doctor called in a cardiologist and also, Dr. Oommen, a neurologist in Beaumont who confidently diagnosed her with MG. As it turns out, Tracey actually had had ocular MG all these years and never realized it. As a registered nurse, MG had just been one of those rare conditions she read about in nursing school that most nurses felt they would most likely never see. Tracey researched it again and saw that her symptoms actually connected. She was put on Mestinon and had to take off work and work alternate assignments for about 6 months while a suitable regimen was gained. She eventually started to see Dr. Smith at Methodist in Houston and was put on a larger regimen of medication which seemed to work. She was prescribed Cellcept for a while which meant she was prone to illness and her physicians decided to reduce her direct contact with patients. She is now on IVIG monthly, and off of Cellcept. Tracey now works in quality management and takes every opportunity to educate nurses and patients. Tracey also began seeing Dr. King Mason, a Houston naturopathic Doctor, earlier this year. In addition to providing natural-based supplements, Dr.King also advises her in healthy nutrition which she attributes (in large part) to feeling better, slowing the weight gain from steroids, and reclaiming her energy.
Not long after her diagnosis, Tracey found the closest support group, which was in Houston, and spoke with Rachel Higgins, the support group leader. It was through Rachel that she learned much about MG, the MGFA, and finally felt like someone understood for the first time what she was going through. It has become extremely important to Tracey for people to be educated and to understand MG…not just the public, but the medical community, who initially thought there was nothing wrong with her. Through her own research, she found the Walk and knew it would be a great place to get involved and meet others who were dealing with what she has dealt with on a daily basis. She participated last year, even though she was very weak and unable to walk, and ended up raising over $2,300. As the Local Walk Hero, she wants to bring recognition to MG and make sure people finally know more about it and what a diagnosis entails. Her goal this year is to be able to walk at least 1 mile of the route and will be joined by her husband and sons and is rallying people from her 28 person team last year to join her again. Her IVIG nurse has even signed up as a part of her team!
For those going through their own diagnosis, Tracey wants you to remember to remain positive, remain focused, and live one day at a time. She knows what it’s like to get frustrated and wish that everything would go back to normal immediately. She, herself used to be a very fast power walker, walked a lot in the Army Reserves, and became very frustrated when it became difficult to walk from her living room to the kitchen. But, she remained positive, and soon things got better for her and she is so thankful for where she is now. For supporters, she advises to always remember to have patience. Although it can be frustrating to make the many adjustments needed, just stop to realize how frustrating it is for your loved one as well. Work always together as a team to conquer this illness.
She, her family, and her team are looking forward to seeing everyone at the Houston Walk this year and plans to make it her most successful year!
Raise awareness and show your support by downloading our NEW MG Walk Twibbon!
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today: