It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
It was only about 5 years ago, when Jeanne started to notice the beginning symptoms of MG. She did a lot of handiwork and read a lot, but was suddenly noticing trouble with her eyes and having a very hard time focusing. Thinking it was only a problem with her eyes, she went to her eye doctor, but after an examination, he immediately referred Jeanne to a neurologist. After a series of tests, she was diagnosed with myasthenia gravis on March 13, 2013.
After being diagnosed, Jeanne’s family immediately began researching on the internet and discovered the support group in New Orleans founded by Tommy Santora. Tommy is an amazing person who always brings lots of information about the disease to the meetings, and Jeanne always attends the meetings if she is able. At the meetings you are surrounded by other people with this disease and it is always uplifting to Jeanne to hear other stories, hear about their progress and to know you are not alone. It is also through these meetings that she and her family found out about the MG Walk, and it is something they all look forward to every year. It’s a glorious day with all her children, grandchildren, great-grandchildren, niece, and other family members all present showing their love and support. Tommy always makes the walk very special with local celebrity entertainment, good music and good food, and of course, her family takes turns pushing Jeanne along the route in her wheelchair and has a great time doing it! And, they love creating clever names for the team!
When Jeanne was first diagnosed it seemed that not many people were aware of this disease, but she hears more and more about people who are being diagnosed. The MG Walk creates awareness to people who ordinarily would not know about it, and she is hopeful this Walk will provide funding for better treatments and ultimately a cure for MG.
Jeanne’s advice to other people living with MG: find a good support group…with support you can get through anything! Always keep a list of the medications you are taking along with the list from the MGFA as to what MG patients should not take.
“When I wake up in the morning I can usually tell if it is going to be a good day or a bad day living with MG. I rejoice in the good days and think positive on the bad, knowing it will be better soon! Stay hopeful!”
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today: