It was a great day of awareness, fundraising for important resources for those living with MG, and such great support in the MG Community. Keep the momentum going! All fundraising pages will remain open through December, so there is still time to reach all of our goals. Reach out to your family, friends, and coworkers and tell them all about your great experience at the walk (be sure to show them all the photos!), and encourage them to support you. Follow up and thank all those that did donate, and please contact the MG Walk Office for any tips on post-event fundraising.
Thank you all for an amazing day, a great event, and for coming together and doing all we can to reach the ultimate finish line…a world without myasthenia gravis!
Use the following documents to help spread the world to your network and community about the upcoming Seattle MG Walk!
If you were to look up the definition of Corey Russell in the dictionary, you will find the words optimistic, loyal, ray of sunshine, leader in positive morale (and cheesy jokes), and most importantly – determined.
But when Corey’s mother was hospitalized and incubated for 3 weeks in 2016, his world came crumbling down amongst the unknown. As doctors filtered in and out, Corey scrambled to find the light at the end of the tunnel. And when his mother was finally diagnosed with MG, Corey looked to the doctor for support and optimism when faced with this unknown disease; immediately asking if the doctor was an expert in the field of MG.
What happened next would fuel Corey’s passion, and ignite his determination for the rest of his life. When Corey asked his mother’s neurologist if he was an expert in MG, the doctor condescendingly responded “I am a Neurologist ain’t I?”. Shocked with the patronizing response, Corey immediately went into the hospital hall and began to research symptoms, support groups, and resources for MG – determined to become an expert and advocate for his mother. He immediately found the MG Walk, and within 5 minutes of the diagnosis, Corey walked back into the hospital room and told his family “we are doing the Walk!”
Corey’s mother ultimately passed away soon after her diagnosis. But fueled with the passion to learn more, Corey rallied his family together to attend their first MG Walk in honor of their mom. It was there that Corey met Kathie Bibeau (Seattle Support Group Leader), who encourage Corey to go to an upcoming Support Group Meeting. This left Corey confused and insecure. Corey didn’t have MG…so why should he attend a Support Group Meeting? Would people accept him if he didn’t have MG? Luckily, Corey attended the next Support Group meeting, and the rest is history.
Corey now attends about 80% of the Seattle Support Group Meetings and has found his home in the MG community as an advocate and former caregiver. Shocked to hear story after story of others journeys with MG, he realized his mother had been complaining of symptoms for years. Because of that, Corey now uses his voice to raise awareness. Any time he sees or meets a doctor, nurse, etc. he immediately asks them if they know about myasthenia graivs. Unfortunately, similar to 2016, often Corey is met with responses like “I don’t have time for that”, or “of course I know what MG is” (when they don’t really know)…but that doesn’t stop him. In fact, it’s the fuel to keep going, and spreading the word with hopes that one day – everyone will know more about MG to allow quick diagnosis.
Throughout the year you will find Corey hosting many DIY fundraising events to raise funds for the MGFA, including a Carshow and Garage Sale which are both in their 2nd year. He is a yearly attendee at BOTH the Seattle and Portland MG Walks, and the MGFA National Conference.
Corey is a true example and inspiration for many who may not have MG themselves, but none the less, have a passion and drive to continue to advocate for the myasthenia gravis community – the community that has truly become his family.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today:
Checks should be mailed to: