Come and join us for the 2017 Virginia MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!

All that’s left after that is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!

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We are thrilled to announce that the 2017 Virginia MG Walk Hero is…Philip Aitken-Cade!
 
 
While walking his farm one morning after a storm, Philip Aitken-Cade noticed that a huge branch from a cherry tree had been taken to the ground by the wind. Even though the tree had been broken, he noticed that the branch was full of beautiful cherry blossoms. In due course the tree produced a wonderful harvest of cherries. That is how Phil views his diagnosis with myasthenia gravis. He may have a medical condition that has caused him to make modifications in his life, but it does not stop him from living the farm life he loves.

Phil was diagnosed with MG in 2010 after he went into crisis and ended up in Mary Washington Hospital. He had symptoms prior to this incident such as slurred speech, difficulty swallowing, and fatigue but his GP found no cause for the problem.  After spending Thanksgiving and Christmas with feeding tubes and other indignities, it was determined that Phil has Bulbar MG that affects his tongue and throat and his diaphragm loses strength when he is breathing. General muscle strength is not degraded, but stamina is, so when walking around the farm he carries a cane that has a seat attached so he can take rests when necessary. Because heat really saps his energy he has an air conditioner in his tractor to combat hot days while cutting and baling hay on his farm. Despite anything that myasthenia gravis throws his way, he does not let it become debilitating, and he and his family maintain a positive attitude and support the entire time. Hazel his wife is his caregiver and biggest advocate.

Much credit for the positive outcome must go to Dr. Sandra Crouse at Mary Washington Hospital and Dr Ted Burns at UVA.  By adhering to their prescribed medications of Mestinon and Cellcept plus IVIg (every 6 weeks) Phil is able to lead an active life including farming, classic cars, and community events.  There are days when activity is slow, but the less you do the less you can do, so keep on trucking!

That positive attitude has turned into positive action once he learned of the MG Walk. After his MG diagnosis, Phil and Hazel researched everything about MG including the MGFA web site and came upon the support group that meets in Manassas, VA. Though it is 60 miles away from his home, it is still so important for Phil. It was actually at the support group that he met Tom Larsen, and the two realized that they had served in the Air Force at the same time, at the same base, and even attended the same grad school studying Aerospace Engineering, but never met each other until these many years later. And it was through the support group and Tom (Tom’s Rockets) that Phil and his family became involved with the MG Walk for a World without MG.

As the Virginia MG Walk Hero, Phil hopes to inspire others going through their diagnosis with MG to not let it become a debilitating condition. You may have this “new normal” and have to make some adjustments in your life to accommodate, but just like that cherry tree, you can still live a beautiful and fulfilling life. Keep that positive attitude, turn it into positive action and get involved in helping to raise the funds for research into better treatments, quicker diagnoses, and ultimately, a cure for MG.


Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!

On MG Walk Day, we gather to celebrate those we love who live with MG, commemorate the research we’ve helped to develop with funds raised!

Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!

MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123

If you have questions or want to know more, contact us today:
1-855.MG.Walks (1-855.649.2557)
Info@MGWalk.org

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South Run Park, Springfield, VA

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South Run Park, Springfield, VA 38.750770, -77.273626

Thank you to our sponsors!
 

Goal: $25,000
30 percent raised
$5,535 raised so far
in Virginia
$19,465 to go!

Updates

Checks should be mailed to:

MG Walk Office 1707 N. Randall Rd, Suite 200 Elgin, IL 60123
Please include the participant, team, and Walk location in the memo section.