Come and join us for the 2019 Portland MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!
All that’s left after that, is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!
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SPREAD THE WORD!
Use the following documents to help spread the word to your network and community about the upcoming MG Walk!
My name is Calvin Arnason, I am 72 years old, father of 4, husband to ONE. 30 years ago this month I began to experience strange symptoms: I would make mistakes on the piano I never had made before, my jaw would become tired in the middle of lunch, my smile began to look OFF, and then I started to have trouble taking deep breaths. I was diagnosed within 2 days of my first doctor visit. And within 8 months my hands had become virtual claws, no finger articulation, couldn’t sign my name, I couldn’t talk longer than 30-60 seconds, I couldn’t hold my head up, and during 2 myasthenic crises I had to be intubated for 2 weeks, and was saved [literally saved] through plasmapheresis – when the needles were 18 gauge and the process lasted 8 hours a session. In late 1989 my 4 children ranged in age from 4 to 14. My wife was the homemaker. I had reoccurring crises for the next 11 years, until 2001, when the most serious crisis occurred. Now and ever since 2007 I am nearly completely free of symptoms of Myasthenia.
I am not a hero. I am merely a normal man interested in life and fulfilling my responsibilities. However, there WERE real heroes involved in my recovery: my wife calls them guardian angels, my mother called them walking miracles.
Dr. Ragole hails from Denver, Colorado and graduated from the University of Colorado School of Medicine. He completed his residency in Neurology at the University of California, San Francisco and his Neuromuscular Medicine fellowship at Brigham & Women’s, Massachusetts General and Boston Children’s Hospitals in Boston. He is especially interested in the treatment of myasthenia gravis and other neuromuscular junction disorders. He also cares for patients with hereditary myopathies and muscular dystrophies and motor neuron diseases. His research focuses on evidence-based treatment in myasthenia gravis and clinical trials for novel therapies.
In his spare time, Dr. Ragole enjoys exploring the Pacific Northwest with his family, hiking, cycling and gardening.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG and commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today: