Come and join us for the 2019 Houston MG Walk as we continue taking “steps” toward the ultimate finish line…a world without myasthenia gravis! Register now to join an existing team, or to start and Captain your own!
All that’s left after that, is to create and customize your FREE personal fundraising page, share your connection to myasthenia gravis and start fundraising!
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SPREAD THE WORD!
Use the following documents to help spread the word to your network and community about the upcoming MG Walk!
My story began at age 12 sitting around the dinner table eating and conversing with my family and all of a sudden I had difficulty saying some words. I look at everyone else like “did you see what just happened?” Then, Mom and Dad tell me “enunciate” “enunciate”. I know I can’t, despite the effort.
That’s how my journey to Wonder Woman began. Soon following the speech issues, I began having trouble chewing. Then, the ever-dreaded “Doctor Hopping” began. We saw our PCP, ENT’s, speech pathologists, speech therapists and finally a neurologist. The neurologist did a quick nerve conduction test and 1/2 of a pill he called Mestinon. Just like that, I was diagnosed with Myasthenia Gravis. Mya-who-what???
Mestinon was a miracle, and I could eat and speak with ease again, but at age 14, my symptoms became so bad it lead to extreme weight loss, and the need to see a neuromuscular specialist. The next options were prednisone or a thymectomy. My mom knew the dangers of the long-term use of prednisone, so we opted for the thymectomy. The reason was because it was believed the antibodies that are attacking my muscle receptors are being created in a very overactive thymus gland. It was a success, and eventually led to my complete remission 4 years later, where it remained for 25 years!
In September 2011, I began having speech issues again. I knew exactly what it was – I was no longer in remission. In the months to follow, my MG progressed to far worse symptoms than just my speech, it was now generalized over my entire body including ocular issues. Over the next few years it would continue to worsen to the point of losing my job, searching for better doctors and newer treatments to help save me from my quickening decline.
In the following years until December 2018, I had tried almost every treatment available, including the newest, Soliris. Some treatments helped while others didn’t, but something is now “clicking” because I am on the mend, feeling more and more normal with each day.
I am grateful and amazed at just how much stronger I am for having gone through all the trials and tribulations because of MG. This journey has taught me perseverance, tenacity, compassion and most of all to have faith and never lose hope! There is power in being positive and never giving up, and I am LIVING proof!
Dr. Simpson is Co-director, MDA Neuromuscular Clinics, Director, ALS Clinical Research Division, and head of the Neuromuscular Medicine Division in the Stanley H. Appel Department of Neurology at the Houston Methodist. Her clinical focus includes a wide range of neuromuscular disorders: Muscular Dystrophy, Myasthenia Gravis, Neuropathy, ALS, inflammatory myopathy, mitochondrial and metabolic myopathy.
She is also education director of the Neurology residency program and Neuromuscular Medicine Fellowship Program. She has served as a writer for the American Academy of Neurology’s Residency In-Service Training Examination Committee, and as an examiner for the American Board of Psychiatry and Neurology Part II Certification Board Exam. She has served as a member of the AAN Scientific Task Force Committee and serves as sub-committee Chair of the Neurology Self-Assessment Examination (Annual Meeting Edition 2012, 2013, 2014, 2015, 2016, & 2017) and program director for the Maintenance of Certification Program at the annual American Academy of Neurology (AAN) Breakthroughs in Neurology Regional Conferences (2015-2017) and ANN Annual program (2016-2017). She currently serves on the AAN Education Committee and as an AANEM Symposium Chair for sessions “Respiratory Management of the Neuromuscular Patient” (2017-18) and “Impact of Genomic Testing in NM Medicine” (2018).
She directs clinical trial research in Neuromuscular Medicine and serves as primary investigator for several trials in ALS, Myasthenia Gravis, CIDP, and metabolic myopathies.
Dr. Simpson received her Bachelor’s Degree from Rice University and completed her medical school education at University of Texas Medical School at Houston. She completed adult neurology residency training and ALS Basic Science Research Fellowship at Baylor College of Medicine. Dr. Simpson then went on to complete the Physician Scientist Development Fellowship Program at Baylor College of Medicine and was appointed as co-director of the MDA clinic at Houston Methodist Neurological Institute where she also serves as education director for the residency and fellowship programs.
She has received certification for completing the Physician Leadership and Advanced Medical Department Leadership course through the George McMillan Fleming Center for HealthCare Management-UTHSC.
She is board certified in Neurology and Neuromuscular Medicine.
Not sure where to begin? Check out our fundraising tools to help you raise MG awareness and increase your fundraising!
On MG Walk Day, we gather to celebrate those we love who live with MG and commemorate the research we’ve helped to develop with funds raised!
Share your fundraising page and links to donate via email and on your social media accounts. If you have checks or cash funds to turn in, please let us know and we can help you add them to your fundraising page. Checks may be mailed to the address below. Please be sure you’ve written your team name in the memo field!
MG Walk Office
1707 N. Randall Rd, Suite 200
Elgin, IL 60123
If you have questions or want to know more, contact us today: